Friday, February 28, 2014

Once a Preemie, Always a Preemie

Anyone who has ever spent time in the NICU knows about the "NICU rollercoaster". NICU babies are super unpredictable and can be doing fine one day and terrible the next. I remember several times during our stay thinking that I can't wait until Nate is bigger and healthier and we can leave this stupid rollercoaster behind. I'm beginning to learn that preemies don't get off that rollercoaster for a long long time. It is no longer life or death situations that they face but there are still times when they take 1 step in the right direction and then 2 steps back in their progress.

PT
Nate has graduated from physical therapy for now. He is doing almost everything a normal almost-2-year-old should be doing. He's walking well, running, climbing, and trying hard to jump. He no longer has any issues with tight muscles in his legs or neck and has finally figured out how to go up and down the stairs. Yay!

ST
Speech therapy has been going pretty well. Nate is picking up more signs for different words which has made communicating with him much much easier. He can now sign more, milk, and dog. And he's made up his own signs for frog, all done, and crash. He can also tell you the sound of a fish and a lion/monster. He has finally started clapping and we're at the beginning stages of consistent waving. He's made a ton of progress over the past couple of months. We still don't have any words other than yeah and his dadadada babbling but we're working on strengthening his mouth and tongue so he can start to make new sounds. 

OT
Occupational therapy is our new major focus. Our PT suggested we have him evaluated by an OT about a month ago. She was noticing some fine motor delays as well as some other issues that she wanted to have looked at. Nate's results came back showing some pretty significant delays. They tested 2 main areas: hand grasping strength and hand-eye coordination. At 23 months, Nate is at a 14 month level for grasping and a 12 month level for hand-eye coordination. She also suggested we get Nate's vision tested again just to make sure that poor eyesight doesn't have anything to do with it. We have our annual appointment with Nate's eye doctor next month in Boise so we are going to wait until then.

The OT also did an evaluation for Sensory Processing Disorder. Here's a link to a website that explains SPD http://www.prematurity.org/child/sensory-integration-preemie.html. Many people have suspected that Nate may have SPD since he was in the hospital but this was our first official evaluation. His main areas of trouble are auditory, tactile, and oral. This explains why he seeks out the loudest toys possible, he NEVER sits still, gags when he touches something he doesn't like (like grass), and it explains his previous eating and food texture issues. The OT is confident that we'll be able to help him learn to handle the things that bug him so he doesn't have to struggle with it for the rest of his life.

Overall, we are so so proud of our little bug and all the progress he has made. We never dreamed he would be doing so well! These latest setbacks are just a short list  compared to what he's already overcome. He's the strongest person I know!

Friday, February 14, 2014

Happy Un-Birthday Nate!!

Nate never got a typical 1st birthday party. We were still in the middle of RSV season and he was still gagging and puking with pretty much all foods. So our big party was actually just us at home cleaning up a crushed up banana muffin with a candle in it :)

Todd's work had cupcakes last week and he brought home the extras. We thought it was the perfect time to give Nate his long awaited first cupcake. You can see for yourself how much he enjoyed it!




Friday, February 7, 2014

When Did My Tiny Baby Turn Into a Big Boy???

 I'm not sure how this fragile baby...

Turned into this...
For some reason, this picture made me suddenly realize how big Nate is. The first time I held him I never dreamed he would grow up to be such a healthy and happy boy. 

He takes out the garbage

He sweeps the floor
  
He no longer walks...he runs!

I LOVE my "little" Nate Bug!

Thursday, February 6, 2014

I LOVE My Daddy!

Nate LOVES his Daddy! Like, REALLY loves him! When Todd is around, everyone else, including me, is just second best. This tax season has been really hard on Nate. Whenever Todd is home, Nate is literally attached to his hip.

You can't hear it very well in the video but the little toy says, "Can You Give Me a Hug?" I don't know why he's so obedient with his toys but not with me :)

We have to call daddy at work everyday. He gets super excited every time I pick up my phone because he thinks we are calling Todd.